Spring Privacy Series: Consumer Generated and Controlled Health Data

former FTC Conference Center 601 New Jersey Avenue, NW, Washington, DC 20001 | Directions & Nearby

Event Description

On May 7, 2014, the Federal Trade Commission staff hosted a seminar on Consumer Generated and Controlled Health Data.

The seminar addressed the increasing role consumers are taking in managing and generating their own health data.  For example, consumers are researching their health conditions and diagnosing themselves online.  Consumers are also uploading their information into personal health records and apps that allow them to manage and analyze their data, and utilizing connected health and fitness devices that regularly collect information about them and transmit this information to other entities. 

Speakers discussed the privacy concerns, as well as the potential benefits arising from the movement of health data outside the traditional medical provider context.  They talked about the types of websites, products, and services that consumers use to generate and control their health data, and they discussed consumers’ expectations regarding privacy and security protections, as well as the actions that some companies take to protect consumers’ privacy and security. 

You can view an archived webcast of the event.  A transcript of the proceedings is also available below. 

The Commission is accepting written comments on issues related to this workshop until June 9, 2014.  Please see below for instructions on how to submit comments.

Event Details

FTC Privacy Policy

Under the Freedom of Information Act (“FOIA”) or other laws, we may be required to disclose to outside organizations the information you provide when you pre-register. The Commission will consider all timely and responsive public comments, whether filed in paper or electronic form, and as a matter of discretion, we make every effort to remove home contact information for individuals from the public comments before posting them on the FTC website.

The FTC Act and other laws we administer permit the collection of your pre-registration contact information and the comments you file to consider and use in this proceeding as appropriate. For additional information, including routine uses permitted by the Privacy Act, see the Commission’s comprehensive Privacy Policy.

This event is open to the public and may be photographed, videotaped, webcast, or otherwise recorded. By participating in this event, you are agreeing that your image — and anything you say or submit — may be posted indefinitely at ftc.gov or on one of the Commission's publicly available social media sites.