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The Federal Trade Commission announced the agenda and panelists for its upcoming seminar on the privacy ramifications of consumer generated and controlled health data, taking place on May 7 from 10 a.m. to noon in Washington, D.C.

The seminar, which is part of the FTC’s spring privacy series, will look at the various ways consumers are increasingly managing and generating their own health data, from researching their health conditions online to uploading their information into personal health records and apps that allow them to manage and analyze their data.  Speakers and panelists will explore the potential privacy implications of these emerging technologies along with their possible benefits.

The seminar will take place at the FTC Conference Center, 601 New Jersey Ave., NW, Washington, D.C.           

The agenda and panelists are as follows:

10:00 am – 10:05 am


10:05 am – 10:20 am

Presentation:  Health Data Flows
Latanya Sweeney, Chief Technologist, FTC

10:20 am – 10:30 am

Presentation:  A Snapshot of Data Sharing by Select Health and Fitness Apps
Jah-Juin (“Jared”) Ho, Attorney, Mobile Technology Unit, FTC

10:30 am – 12:00 pm

Panel Discussion

  • Cora Han, Senior Attorney, Division of Privacy and Identity Protection, FTC
  • Kristen Anderson, Attorney, Division of Privacy and Identity Protection, FTC


  • Christopher R. Burrow, M.D.,  EVP Medical Affairs, Humetrix 
  • Joseph Lorenzo Hall, Chief Technologist, Center for Democracy & Technology
  • Sally Okun, RN, MMHS, Vice President for Advocacy, Policy and Patient Safety, PatientsLikeMe
  • Heather Patterson, Postdoctoral Research Fellow, New York University
  • Joy Pritts, Chief Privacy Officer, Office of the National Coordinator for Health Information Technology, Department of Health & Human Services

The Federal Trade Commission works for consumers to prevent fraudulent, deceptive, and unfair business practices and to provide information to help spot, stop, and avoid them. To file a complaint in English or Spanish, visit the FTC’s online Complaint Assistant or call 1-877-FTC-HELP (1-877-382-4357). The FTC enters complaints into Consumer Sentinel, a secure, online database available to more than 2,000 civil and criminal law enforcement agencies in the U.S. and abroad. The FTC’s website provides free information on a variety of consumer topics. Like the FTC on Facebook, follow us on Twitter, and subscribe to press releases for the latest FTC news and resources.

Contact Information

Jay Mayfield
Office of Public Affairs

Cora Han
Bureau of Consumer Protection

Kristen Anderson
Bureau of Consumer Protection