FTC Announces Agenda, Panelists for Upcoming Seminar on Privacy Implications of Consumer Generated and Controlled Health Data

For Release

The Federal Trade Commission announced the agenda and panelists for its upcoming seminar on the privacy ramifications of consumer generated and controlled health data, taking place on May 7 from 10 a.m. to noon in Washington, D.C.

The seminar, which is part of the FTC’s spring privacy series, will look at the various ways consumers are increasingly managing and generating their own health data, from researching their health conditions online to uploading their information into personal health records and apps that allow them to manage and analyze their data.  Speakers and panelists will explore the potential privacy implications of these emerging technologies along with their possible benefits.

The seminar will take place at the FTC Conference Center, 601 New Jersey Ave., NW, Washington, D.C.           

The agenda and panelists are as follows:

10:00 am – 10:05 am

Welcome

10:05 am – 10:20 am

Presentation:  Health Data Flows
Latanya Sweeney, Chief Technologist, FTC

10:20 am – 10:30 am

Presentation:  A Snapshot of Data Sharing by Select Health and Fitness Apps
Jah-Juin (“Jared”) Ho, Attorney, Mobile Technology Unit, FTC

10:30 am – 12:00 pm

Panel Discussion
Moderators:

  • Cora Han, Senior Attorney, Division of Privacy and Identity Protection, FTC
  • Kristen Anderson, Attorney, Division of Privacy and Identity Protection, FTC

Panelists:

  • Christopher R. Burrow, M.D.,  EVP Medical Affairs, Humetrix 
  • Joseph Lorenzo Hall, Chief Technologist, Center for Democracy & Technology
  • Sally Okun, RN, MMHS, Vice President for Advocacy, Policy and Patient Safety, PatientsLikeMe
  • Heather Patterson, Postdoctoral Research Fellow, New York University
  • Joy Pritts, Chief Privacy Officer, Office of the National Coordinator for Health Information Technology, Department of Health & Human Services

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Contact Information

MEDIA CONTACT:
Jay Mayfield
Office of Public Affairs
202-326-2181

STAFF CONTACT:
Cora Han
Bureau of Consumer Protection
202-326-2441

Kristen Anderson
Bureau of Consumer Protection
202-326-3209