Spring Privacy Series: Consumer Generated and Controlled Health Data

FTC Conference Center 601 New Jersey Avenue, NW, Washington, DC 20001 | Directions & Nearby

Conference Description

Increasingly, consumers are taking a more active role in managing and generating their own health data. For example, consumers are researching their health conditions and diagnosing themselves online. Consumers are also uploading their information into personal health records and apps that allow them to manage and analyze their data, and utilizing connected health and fitness devices that regularly collect information about them and transmit this information to other entities.

The movement of health data outside the traditional medical provider context has many potential benefits; however, it also raises potential privacy concerns. The seminar will address questions such as:

  • What types of websites, products, and services are consumers using to generate and control their health data, and how are consumers using them?
  • Who are the companies behind these websites, products, and services, what are their business models, and what does the current marketplace look like?
  • How can consumers benefit from these companies’ websites, products, and services?
  • What actions are these companies taking to protect consumers’ privacy and security?
  • What do consumers expect from these companies regarding privacy and security protections? Do consumers differentiate between these companies and those that offer traditional medical products and services that are covered by HIPAA?
  • What restrictions, if any, do advertising networks and others impose on tracking of health data?   

This event is open to the public, and seats are available on a first-come, first-served basis.  There is no pre-registration.  The seminar will also be webcast.


  • Cora Han (202) 326-2441
  • Kristen Anderson (202) 326-3209

Event Details

FTC Privacy Policy

Under the Freedom of Information Act (“FOIA”) or other laws, we may be required to disclose to outside organizations the information you provide when you pre-register. The Commission will consider all timely and responsive public comments, whether filed in paper or electronic form, and as a matter of discretion, we make every effort to remove home contact information for individuals from the public comments before posting them on the FTC website.

The FTC Act and other laws we administer permit the collection of your pre-registration contact information and the comments you file to consider and use in this proceeding as appropriate. For additional information, including routine uses permitted by the Privacy Act, see the Commission’s comprehensive Privacy Policy.