Submission Number: 00470
Received: 2/18/2011 10:56:10 PM
Commenter: Katherine Johnson
Organization: Patient Privacy Rights
Agency: Federal Trade Commission
Initiative: A Preliminary FTC Staff Report on "Protecting Consumer Privacy in an Era of Rapid Change: A Proposed Framework for Businesses and Policymakers"
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Please see the attached comments. We included comments as a word document and as a PDF.
Patient Privacy Rights is the leading consumer voice for building ethical, trustworthy health IT systems. We have over 12,000 members and lead the bipartisan Coalition for Patient Privacy, representing 10.3 million Americans. We seek to restore the right to informed consent, and the right to health information privacy in electronic systems. Individual consent and control are imperative for patients and consumers to willingly participate in electronic systems and data exchanges.